Posts tagged invisible illness
Doctors, Doubters, and Downright Denial

I think, and most of the Chronic Pain and Invisible Illness community will definitely agree with me here, that perhaps the most painful part of living with invisible diseases like Ehlers Danlos Syndome, isn’t the physical pain at all.

Instead, it’s the pain that comes with the social side of this condition that takes the biggest toll.

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5 things to remember when you can’t stop dwelling on living with no cure.

I think the holidays makes people like me, people with chronic pain and invisible illness, take stock more than others, and a lot of the time I think we end up more disappointed than average Joe. It almost seems cruel that with this disease you are faced with so many unknowns and yet one unwavering certainty, that you have this thing for life and that it will limit you, that it will take things from you.

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Pain and Ambition

A lot of people ask me one question in particular when it comes to living with chronic pain.

How do you do it?

Or similarly I hear-

I don’t know how you do it.

I don’t know how you live like this.

The sad reality of the fact is, that chronic pain is my life now, and I don’t get a choice. Well, I guess I could curl up in a ball and retreat into the depths of my very comfortable bed for all time and never be seen again, but that’s not much of an existence now, is it?

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