Posts tagged chronic pain suppor
Doctors, Doubters, and Downright Denial

I think, and most of the Chronic Pain and Invisible Illness community will definitely agree with me here, that perhaps the most painful part of living with invisible diseases like Ehlers Danlos Syndome, isn’t the physical pain at all.

Instead, it’s the pain that comes with the social side of this condition that takes the biggest toll.

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Stretch Marks and Silver Linings

It’s been a long five weeks since I last wrote on my current WIP project or published anything on my blog. To be honest, I have been burned out, and everything I was writing I hated.

The last three years have been insane for me, culminating in nothing short of 1,500,000 words published and a handful of brand new and equally terrifying diagnoses. It’s been a lot, and I can’t deny that my mental state has thoroughly suffered, to the point where only one month ago I couldn’t bear to look at Indigo Dusk, the current book I’m working on.

When I consider it all, it’s no wonder I’ve been so depressed and anxious, with authors pumping out books left right and centre, and me trying to keep up while battling Ehlers Danlos Syndrome. I suffered pretty badly with externalising my self-worth, and this ultimately left me feeling like nothing I did was good enough. That even on my best days, success with my conditions and the hand of cards I’ve been dealt is nothing short of impossible.

So, I took some time, reset, read some amazing books, and honestly just let my brain recover from the utter trauma that is publishing eleven books in only 36 months.

 

 

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Confessions of a Zealous Zebra- Skin and Hair Care

One of the biggest obstacles for me when i was learning to live with my Ehlers Danlos Syndrome diagnosis was working out what i was now allergic to in terms of skin and hair care. Many of the staple products i had relied on for years were suddenly leaving me with awful flaky scalp, itchy rashes, or dry skin, so I realised it was time to go back to the drawing board and change the products i was using. Please bear in mind every single person is different when it comes to work for them, but these are recommendations and it might give you a place to start.

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Confessions of a Zealous Zebra- Keeping it Comfy

I get a lot of compliments on how creative I am despite the fact that EDS makes buying clothes that are both stylish and comfortable a bit of a challenge. So, for this week’s confession I thought I’d reveal which clothes I love, why, and where you can grab them too! Hang on to your sparkly pants Zebra’s!

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Confessions of a Zealous Zebra- Self Worth

I talk to a lot of chronic pain sufferers, whether that’s because I’m looking for advice, or they’re looking for advice from me. However, I always seem to end up seeing the same thing both externally and internally and it got me thinking.

Chronic pain sufferers struggle with self-worth.

Why is that?

Is it because we are worthless?

Is it because we lose our worth to these diseases?

No.

Absolutely not.

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The Invisible Man- Shining a light on the extraordinary caregivers behind the chronically ill

“100 out of 100 relationships that involve caregiving fail.”

-Dr Phil

 

It’s very rare these days that I see something which makes me irritated enough to write a blog post about it. But here we are. I came across this little pearl of wisdom from Dr Phil via my friend @Queenof_thebookworms who is also a fellow chronic pain sufferer on Instagram. (Side note- she’s really cool- you should definitely go follow her if health related positivity and book love is your thing.) And I was stunned.

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Looking Forward- My 2019

New year, new goals, and new priorities at Kristy Nicolle Inc. This year marks a major departure from my regular author schedule and a movement into a less intense release schedule with my major focus being on marketing. I’ve spent the last 3 years building a solid backlist of books, and so this is year I’m growing my reach and getting those books into more reader’s hands than ever before. I’m super excited about 2019, so I wanted to share with you a few of the things I’m looking forward to in particular.

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