I think the holidays makes people like me, people with chronic pain and invisible illness, take stock more than others, and a lot of the time I think we end up more disappointed than average Joe. It almost seems cruel that with this disease you are faced with so many unknowns and yet one unwavering certainty, that you have this thing for life and that it will limit you, that it will take things from you.Read More
A lot of people ask me one question in particular when it comes to living with chronic pain.
How do you do it?
Or similarly I hear-
I don’t know how you do it.
I don’t know how you live like this.
The sad reality of the fact is, that chronic pain is my life now, and I don’t get a choice. Well, I guess I could curl up in a ball and retreat into the depths of my very comfortable bed for all time and never be seen again, but that’s not much of an existence now, is it?Read More
I’m asked quite regularly how I manage to stay so productive while fighting EDS, Chronic Fatigue, Fibromyalgia, POTS, and swings in my blood sugar which affect my health, so I thought I’d give you guys an insight into how I operate. It’s taken me a good two years to perfect this routine, and more than once I’ve thought about delaying releases, so I can lie around and feel crappy in bed. Luckily for me, I haven’t so far, and I think the fact that I’m a professed workaholic without a 9-5 job really does help keep me productive.Read More